Comments on: What is Complex Regional Pain Syndrome – in plain English http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/ Research into the role of the brain in chronic pain Tue, 07 Feb 2012 09:36:16 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Yvonne Haines http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-50924 Yvonne Haines Mon, 30 Jan 2012 01:15:42 +0000 http://www.bodyinmind.com.au/?p=2330#comment-50924 yvonne/.. reply,I have had crps for twenty three years it started in my right hand/arm and has moved through my body,it has/is a very hard road to travel,lack of understanding and this includes the medical profession I would love to tell my story with the hope that no-one else will have to spend 23years of their life as I have the pain is unbearable even on a 'good' day.Yvonne 3o-1-2o12 yvonne/.. reply,I have had crps for twenty three years it started in my right hand/arm and has moved through my body,it has/is a very hard road to travel,lack of understanding and this includes the medical profession I would love to tell my story with the hope that no-one else will have to spend 23years of their life as I have the pain is unbearable even on a ‘good’ day.Yvonne 3o-1-2o12

]]> By: Kenneth Craig http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-35693 Kenneth Craig Sat, 15 Oct 2011 21:05:03 +0000 http://www.bodyinmind.com.au/?p=2330#comment-35693 I see a fair bit of musculoskeletal CRPS, mainly of the foot, where patients feel like walking on broken glass. I have been using low-intensity extracorporeal shcokwave therapy with a good measure of success. It involves the use of specially generated soundwaves, to induce a bio-molecular and chemical response that will settle the abnormal pain signalling. It is a non-pharmacogenic treatment method. Usually after 4 - 5 sessions patient experience a good measure of relief, and the effects so far have been seen to last over 12 months (and counting). It will not work on cancer or visceral related pain. I see a fair bit of musculoskeletal CRPS, mainly of the foot, where patients feel like walking on broken glass. I have been using low-intensity extracorporeal shcokwave therapy with a good measure of success. It involves the use of specially generated soundwaves, to induce a bio-molecular and chemical response that will settle the abnormal pain signalling. It is a non-pharmacogenic treatment method. Usually after 4 – 5 sessions patient experience a good measure of relief, and the effects so far have been seen to last over 12 months (and counting).

It will not work on cancer or visceral related pain.

]]> By: Malinda http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-31710 Malinda Fri, 02 Sep 2011 09:22:28 +0000 http://www.bodyinmind.com.au/?p=2330#comment-31710 If ifnortmiaon were soccer, this would be a goooooal! If ifnortmiaon were soccer, this would be a goooooal!

]]> By: stephen elsworthy http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-31186 stephen elsworthy Thu, 01 Sep 2011 11:27:04 +0000 http://www.bodyinmind.com.au/?p=2330#comment-31186 I have had CRPS for 4 months in my left arm.Today at work my right arm started to shake on and off until it would not stop. I was taken to hospital as I thought that I was having a reaction to my anti depressants.However after reading that CRPS can transfer over to another limb I am a bit more at ease because when I mentioned this possibility to my physio she thought that I was crazy because she didn't think that it was possible .1.9.2011 I have had CRPS for 4 months in my left arm.Today at work my right arm started to shake on and off until it would not stop. I was taken to hospital as I thought that I was having a reaction to my anti depressants.However after reading that CRPS can transfer over to another limb I am a bit more at ease because when I mentioned this possibility to my physio she thought that I was crazy because she didn’t think that it was possible .1.9.2011

]]> By: langnv http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-26725 langnv Sun, 17 Jul 2011 05:48:27 +0000 http://www.bodyinmind.com.au/?p=2330#comment-26725 I forgot to mention I am from Australia, and would be so grateful for any help I can get. Thank you. I forgot to mention I am from Australia, and would be so grateful for any help I can get. Thank you.

]]> By: langnv http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-26724 langnv Sun, 17 Jul 2011 05:46:33 +0000 http://www.bodyinmind.com.au/?p=2330#comment-26724 I have had CRPS for 6 years now in my left arm, which now involves my left side when a have a flair up, an my right scapula, this could be from "protecting" the original injury site subconsciously, I don't know, but I found TENS actually agrivated the original injury site, as the muscles contracted with the TENS, the pain increased, then kept on even hours after it had be disconnected. Anti-inflammatories gave me 3 ulcers, and narcotics don't work. Ketamine blew my BP to over 200, and made me lose the sight in my left (the affected side) eye temporarily. I have the deformed nails, which are also supersensitive, so must be kept cut short. I would kill for some relief at he moment, as cold weather really affects it badly, lack of sleep is a HUGE problem, as the pain keeps you awake, but if you really drug yourself, the difference with a nights sleep, (once the fog lifts) is really noticeable, so if there is a way to get sleep, ( and I have tried everything, hypnosis, relaxation therapy, hot drinks, cold drinks, alcohol,accupuncture, Bowen therapy, reading, watching T.V.. lying there, getting up etc), it would make a huge difference to our quality of life. I have had CRPS for 6 years now in my left arm, which now involves my left side when a have a flair up, an my right scapula, this could be from “protecting” the original injury site subconsciously, I don’t know, but I found TENS actually agrivated the original injury site, as the muscles contracted with the TENS, the pain increased, then kept on even hours after it had be disconnected. Anti-inflammatories gave me 3 ulcers, and narcotics don’t work. Ketamine blew my BP to over 200, and made me lose the sight in my left (the affected side) eye temporarily. I have the deformed nails, which are also supersensitive, so must be kept cut short. I would kill for some relief at he moment, as cold weather really affects it badly, lack of sleep is a HUGE problem, as the pain keeps you awake, but if you really drug yourself, the difference with a nights sleep, (once the fog lifts) is really noticeable, so if there is a way to get sleep, ( and I have tried everything, hypnosis, relaxation therapy, hot drinks, cold drinks, alcohol,accupuncture, Bowen therapy, reading, watching T.V.. lying there, getting up etc), it would make a huge difference to our quality of life.

]]> By: mandy sedgewick http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-26253 mandy sedgewick Sun, 10 Jul 2011 07:41:52 +0000 http://www.bodyinmind.com.au/?p=2330#comment-26253 I was diagnosed in 1989 with RDS and had trans-auxillary rib resections of an extra rib and 1st rib and sympathectomies of both cervical gangulia and 2 incs of nerve into my brain I am now no better, reliant on methadone /gantin for pain relief and have clawed back a sytle of a life. I have remarried had another child (3rd one) and work 25hrs pw but some days are painful and hard to live with but its up to me how I make this work. I concentrate on what I can do not what I cannot do! I was diagnosed in 1989 with RDS and had trans-auxillary rib resections of an extra rib and 1st rib and sympathectomies of both cervical gangulia and 2 incs of nerve into my brain I am now no better, reliant on methadone /gantin for pain relief and have clawed back a sytle of a life. I have remarried had another child (3rd one) and work 25hrs pw but some days are painful and hard to live with but its up to me how I make this work. I concentrate on what I can do not what I cannot do!

]]> By: What is and what is not biopsychosocial treatment http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-22055 What is and what is not biopsychosocial treatment Tue, 17 May 2011 06:02:13 +0000 http://www.bodyinmind.com.au/?p=2330#comment-22055 [...] since Complex Regional Pain Syndrome, CRPS, is the subject of my current work, I would like to address this specifically. The argument [...] [...] since Complex Regional Pain Syndrome, CRPS, is the subject of my current work, I would like to address this specifically. The argument [...]

]]> By: Heidi http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-13482 Heidi Mon, 15 Nov 2010 00:36:33 +0000 http://www.bodyinmind.com.au/?p=2330#comment-13482 Hi Fred you try contacting Annie O'Connor who may be able to help put you in contact with the right person: Annie O'Connor PT, OCS, Cert. MDT Rehabilitation Institute of Chicago Corporate Director Musculoskeletal Practice VM 312-238-7717 aoconnor@ric.org Hi Fred you try contacting Annie O’Connor who may be able to help put you in contact with the right person:

Annie O’Connor PT, OCS, Cert. MDT
Rehabilitation Institute of Chicago
Corporate Director Musculoskeletal Practice
VM 312-238-7717
aoconnor@ric.org

]]> By: fred wall http://bodyinmind.org/what-is-complex-regional-pain-syndrome-in-plain-english/#comment-13278 fred wall Tue, 09 Nov 2010 18:18:08 +0000 http://www.bodyinmind.com.au/?p=2330#comment-13278 what can you suggest for treatment in Chicago? what can you suggest for treatment in Chicago?

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